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lisamcb
#1 Posted : Friday, March 08, 2013 5:50:28 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2013
Posts: 144
Location: Dumfries
I'm a 40 years old mum to two wee boys of 7 and 9. I was just diagnosed early this week so am still coming to terms with it. I am happy to find a place to be in touch with others like myself.Smile
Lorna-A
#2 Posted : Friday, March 08, 2013 6:40:16 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2010
Posts: 914


Hi there,

So glad you have found this forum. We have all been where you are now and it is not all bad. I'm Lorna I've had RA since 2007 I was hit very badly then but I have been in remission now for years. It does get easier given time. I am 30 years married with 3 grown up daughters. I work with children as a support assistant in schools and love every minute of it.

I have also been laid up since January with a slipped disk in my back but thankfully I am on the mend now.

Lovely to meet you

Take care Lorna x
lisamcb
#3 Posted : Friday, March 08, 2013 7:20:24 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2013
Posts: 144
Location: Dumfries
Thank you Lorna it is so reassuring to be in touch with others, I got the news on Wednesday and typically went to the hospital on my own not thinking I would hear that news. I suppose in some ways it is a relief to me and my family to know what is wrong with me. I also work in a school but in the office. I don't have a very "sympathetic" boss though and she appears not to like asking how I am after being at hospital etc. I am not sure how to broach the subject of actually being diagnosed. Has your work been ok with you after being diagnosed?

I am sorry to hear of your slipped disc but am very heartened to hear you are in remission.



Lisa x
Lorna-A
#4 Posted : Friday, March 08, 2013 8:01:12 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2010
Posts: 914


Hi, Lisa,

Have a read of my positive post to all new members. I hope it gives you comfort knowing it's not all bad. It took me 3 years to get the courage to come on this sight. I was so traumatised on getting my news of RA all these years ago. I was so ill at the time and getting worse by the week, I did not want to know what the future held at that point. But all is well now.

Nice to hear from you

Lorna x
Naomi1
#5 Posted : Saturday, March 09, 2013 12:25:23 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 9/3/2011
Posts: 717
Location: Torbay
Hi Lisa. Welcome to the forum, though sorry you got RA and needed to be here at all. I was diagnosed nearly 2 years ago so the memories of that early period are still quite raw. You've done well to join NRAS. There is a telephone support line which you might find helpful. It was a lifeline for me when I was first ill. I sobbed down the phone to two very sweet women who listened and answered my questions. It's a shock at first to be diagnosed but as you say at least you can explain all the symptoms you've been having and moreover you're now in a position to get the right medication to treat it. There is a section in the forum to do with work related matters and you might find it helpful to look through there, especially as your boss hasn't been that sympathetic. I'd recommend that you read the 2 NRAS booklets (available on this site) about employees with RA. One is directed at employers and it will detail for you what your rights are. You have rights under the Equality Act now (another bonus of official diagnosis) but only if you inform your boss about it. If you have any questions about RA and related matters then please ask away. People on here do understand what you're going through and are willing to share their experiences and their wisdom. I'm only going to offer one piece of advice without being asked first and that's because I think it's relevant to most of us RAers, and that is to rest as much as you can and in any way that you can. You won't be as badly affected by RA if you get plenty of sleep and rest. Try to pace out your chores and activities so you're not trying to do too much at once. I'm still learning this skill by the way. I look forward to getting to know you more over the coming months. Naomi, xxxxxxx
sylviax
#6 Posted : Saturday, March 09, 2013 12:18:51 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Lisa - and welcome to the forum, but sorry you have to have RA to come here. I echo Naomi's words and you've come to good place for support and advice. I was diagnosed in May 2012, but now less than a year later, I am in clinical remission - that means no pain, no inflammation and I can lead a normal life. So there really is light ahead.

Hopefully, the worst bit is behind you, now that you have a diagnosis, there are lots of options for treatment. RA is complex and each of us are individuals so there isn't a single treatment that suits everybody, and it will probably take quite a while to balance out what's best for you. Plus of course, it takes several months for the main drugs to reach their full effect, so you will need lots of patience!

There are lots of people who visit the forum regularly and are willing to share their experiences, so if you have any questions, please feel free to ask.

What meds have you been started on? I began with a steroid jab and a 4 week course of steroid tablets - that was just to give me some instant relief, and meanwhile I got started with my DMARDS - hydroxychloroquin followed by Methatrexate. These take up to 3 months to reach their full effect, and I kept visiting this forum regularly to learn all I could about RA and living with it, and gradually things improved.

Try keeping a positive outlook and things will get easier - and take as much rest as you can manage - although with 2 little lads that's going to be a bit challenging - as it gives your body time and space to let your meds to their job.

Do keep posting - with very best wishes - Sylvia
Be kinder than is necessary because everyone you meet is fighting some kind of battle
lisamcb
#7 Posted : Saturday, March 09, 2013 1:02:00 PM Quote
Rank: Advanced Member


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Joined: 3/8/2013
Posts: 144
Location: Dumfries
Thank you Naomi & Sylvia

I have been started on Methotrexate tablets, Hydroxycholoquine & prednisolone. It's a lot to take in but I am very lucky to have a great husband and family to support me. My emotions are all over the place at the minute and one minute I feel upbeat and fine and the next I just want to cry. It is very raw and will take time to come to terms with. Thankfully this is a lifeline to be in touch with other people who know what I am going through. x
Kathleen_C
#8 Posted : Saturday, March 09, 2013 1:49:33 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,689
Location: Durham
Hi Lisa, and a warm welcome to the forum, where everyone knows how you will be feeling after being diagnosed. Its a lotto take in,so be kind to yourself. I'm very glad you have a supportive family - don't be afraid to lean on them.

I'm Kathleen, a retired teacher,and I was diagnosed over 7 years ago. I currently take humira and various other bits and bobs.
Do keep posting,

Katheen x

Jane.
#9 Posted : Sunday, March 10, 2013 9:17:29 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/2/2012
Posts: 670
Location: where the sun always shines :o
BigGrin Hello Lisa
Warm hello from me.
I was diagnosed when I was 34, a new mum. I find ra a juggle - being happy and loving being a mum, but ra/pain reminding me things are a little different to other mums.
I joined nras last May - I don't talk about ra or things related to ra to anyone other than my hubby, boss at work because I'm off sick following knee replacement. Have a look under work thread....my boss compares me to her old dog with arthritis & her mum!!RollEyes all bosses are different - shame we couldn't pick the loving warm boss to our jobs!!
Still, I do the lottery in hope of not needing to work (haven't got there yet)!
My daughter is fantastic - she knows I have poorly bones - like my knee and loved coming into hospital to see cbeebies on the hospital tv that was in my room, but I don't talk about ra when she is around because I want her to be happy and get on with growing up. She watches get well soon on cbeebies - says they should do poorly knees for me!LOL
I go swimming with her, days out to places - if it is a theme park I try to go on rides if I can't then my hubby has to and I'm happy to take photos (also prove her dad went on certain peppa pig rides)!!!

Do you have occupational threp department for schools? If so worth an appointment/chat to them. I work in the public sector and have occ health unit - and keep them updated because in their medical capacity can tell human resources and my boss how it is medical wise with ra (I keep occ health on my side to help me).

Being a mum with ra is about adapting, if say you feel awful do rainy day things like a dvd for them or ideas from 1001 craft ideas.
My housework doesn't come high as my no1 I have to do anymore (as and when you have the energy)! My hubby helps, kind of!RollEyes

We are here for you!
Jane
Xxx
gogs
#10 Posted : Sunday, March 10, 2013 12:39:50 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 10/20/2012
Posts: 304
Location: Cheshire
Hi Lisa,

Sorry to hear you have been diagnosed with RA, but pleased that you have been started on the 'gold standard' treatment and hopefully will
soon be feeling a bit better.

I was diagnosed with RA eight months ago, so a bit of a newby like you really. I read a lot about the first year or so, and yes you will feel very up and
down.As with any chronic illness coming to terms with the fact that your body has been playing 'dirty tricks' on you, and that you are not as 'in control'
of your life as you believed is very testing.

Physiologically you will be coping with the changes to your body, psychologically you will being having to assimilate the losses, and losses are painful -
the loss of good health is a big thing, the loss of flexability and movement, also what does the future hold? You have two small children and I'm sure
you must wonder how RA will affect their future as well.

I'm glad you've found this forum, they are all lovely people on here and I have had some good sound advice from those more in the know than me.
I've also made it a point to understand as much as I possibly can about the condition, it's management and treatment.

I wish you well and look forward to reading your contributions.
GogsSmile
lisamcb
#11 Posted : Sunday, March 10, 2013 8:33:05 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2013
Posts: 144
Location: Dumfries
Hello to all that replied to my posting.

Thank you for all of your kind wishes and advice.

I am already finding this a lifeline as you all understand and as it is Mother's Day I have enjoyed my day with my wee boys and even managed to go out a wee 5-minute walk with the dog. The housework is way down my list of priorities now and will be using what energy I have in doing things with the boys.

Lisa xx
sylviax
#12 Posted : Sunday, March 10, 2013 11:10:48 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi Lisa - glad you've had a nice Mothers' Day with your boys and your wee dog.

I had breakfast in bed - cooked by my 15 yr old daughter ! Wow she's not just teenage angst, sometimes she's an angel! hahaha - only kidding - she's lovely, but is finding GCSE's very trying, so has moody days - luckily today wasn't one of those. I've also got a 13 yr old daughter, who suddenly out of the blue decided to organise my clothes for work tomorrow - apparently I shall be wearing my coral red jacket, with red shoes, plus cream trousers - rather a nice combination, but quite summery so I hope that we don't get the snow that's been forecast. Kids keep us on our toes - hope your boys are well.

Best wishes - Sylvia xx
Be kinder than is necessary because everyone you meet is fighting some kind of battle
jenni_b
#13 Posted : Monday, March 11, 2013 10:39:22 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Good morning Lisa!

I'm jenni, I'm 37 and have a hubby, 2 teens who we adopted and then we had a little surprise and she is 5 nowSmile

I've got severe ra and have been dx since I was 20.

It's not the most exciting thing in my life though I do like to come in and support others on here and feel supported too.

So, lets find out a bit about each other
I'm sat having a cuppa tea looking at my home magazine as I've had the hall plastered and looking for inspiration.....

What are your days like at the moment?

Jenni x
how to be a velvet bulldoser
lisamcb
#14 Posted : Monday, March 11, 2013 7:03:00 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2013
Posts: 144
Location: Dumfries
Hi everyone,

I only work 3 days part-time Mon, Tues & Wed morning and told my boss today. I was pleasantly surprised by the sympathy and understanding. I am trying to keep positive especially as I have my 2 wee boys to think about. We do so much together as I get all the school holidays and we are always up to something. They are great at helping me when I need it.

BigGrin

Lisa xx
Deb1975
#15 Posted : Monday, March 11, 2013 7:20:39 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 8/19/2011
Posts: 31
Location: Manchester
Hi Lisa
Welcome to the board sorry to hear you have RA though. You do have your hands full with 2 little boys, I have no kids and am always full of admiration for others on here who juggle RA and kids I'm not sure I could do it. Ref your reply to my post on the other thread yes flat shoes all the way from now on

Deb xx
jenni_b
#16 Posted : Monday, March 11, 2013 7:58:23 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
Hi again

I liked working part time when my older 2 were home, I did 3 days then 2 etc.

I was a primary teacher but its very physical and demanding and the hours are mad.
But I still think its the best job in the worldSmile

I'm pleased your boss was sympathetic.
Most patients do so well on the drugs that they can keep working.

NRAS do a superb booklet for employers, might be worth getting one.

All the best
how to be a velvet bulldoser
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